What's the Verdict? #2 Genetic MIRACLE

In the hospital they prick your childs body somewhere and then go and test the blood for genetic abnormalitites. It usually takes 4 weeks and you get a letter in the mail. Ours took 6 weeks and we got the results when we went to his pediatrician at the time, Doctor Scott. After checking him out and declaring him good, the doctor put his hand on my shoulder and told me that Luke had Trisomy 13 - which is fatal and said enjoy your time with him, he probably won't survive past 4 years old. I left not entirely sure that I had heard him correctly, all i could do was look at this sweet little boy so tiny and perfect try to absorb what the doctor had said. My husband kicked things into high gear and made sure that we got to see the genetisist in charge of the study the next day.
The head genetisist at our nearest children's hospital took a look at our boy and reviwed his results and said, "I don't know what to tell you. What Luke has we have NEVER seen before." The reason your results took so long is that the lab asked to redo the study and dig deeper with the FISH test (i don't know, don't ask). Here is the results as I understand them.... Think about your genes as books stacked in a pile on the on the floor in alphabetical order, in the center of the stacks is the "brain" of the gene which tells the "books" which order to be in. Luke's are all in order except for the bottom which was smudged and here is the kicker for me - they were all in order but there was no center, no brain. What does this translate to? While most Trisomy 13 children do not survive because their "books" do not communicate with the cells correctly so therefore organs don't get made correctly - organs like the heart, the lungs etc.. and this was probably the root cause of the dandy walker, however, no other organs were affected for Luke. Thus, the addition that Dr. Scott unintentionally left off, mosiac, Trisomy 13 mosiac, meant a miracle for our baby. The doctor couldn't tell me with any certainty, but he felt pretty sure that his life expectancy should be that of any other person. God is so good!