Sunday, April 13, 2008

What's the Verdict? #1 Hearing

Dandy Walker variant, as I understand it, is having the traits of Dandy Walker Syndrome without the all of the same effects. What traits you get is somewhat of a mixed bag and is different for every child. At birth they gave him a hearing test, several actually, and figured out that something was wrong with his hearing - they had hoped that it was just amniotic fluid still in the ears, but later test revealed severe hearing loss in both ears. At the time we were going to a Neurodevelopmental therapist who travels around the country teaching the parents therapies to do at home with their children with remarkable results, you can contact them at http://www.hope-future.com/ . She stresses for the children to get tympanograms. A typanogram measures the amount of fluid behind the ear which is OFTEN missed by pediatricians when they check ears. If your child has fluid behind the ears that isn't going away she says to push for tubes like your house is on fire. That is exactly what we did and we are so greatful. We started pushing when he was 6 months and had a doctor agree to do it when he was 9 months. Luke was hearing sounds as we hear things when we are under water. His hearing, improved by 60 decibles in one ear and 40 in the other. As you can imagine his speech began to come along as well. When he got a little older he got a hearing aid for that his bad ear and the deaf/ blind organization bought for him a sound field that will travel with him to whatever school he goes to (this was a HUGE blessing!).

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