Luke is now 5 years old and a legend in his own mind but when you have been given a death sentence by a few gloomy doctors you appreciate the life that you see. He has his issues to overcome; he has a severe hearing loss in one ear and a mild loss in the other, scoliosis (curving of the spine), he walked late, 22 months, but i should have been grateful for those time because now he runs everwhere, he had to wear AFO's (braces that come to the ankle) until 6 months or so ago, he wears some pretty serious glasses and may need surgery in the future, he still has speech issues but he still manages to talk way too much and way too early! He has long since conquered potty training with #1 but #2 has been a struggle. After seeing the G.I. doc and figuring out the problem (stretched intestine) and being on strong doses of Murilax he has been getting to the potty on time - we are excited about this one - shew! There is nothing about his appearance or movements that suggests any issues to the untrained eye. He's a pretty normal kid.
He recognizes and his ABC's and can write many of them, he writes his name, and can read a few basic words, he knows his opposites, colors, shapes, animals (thanks to an AWESOME school),
and is a smart guy. His dad is a mechanic and Luke carries those tendancies - he loves to try and fix things or take them apart - he can analyze and watch and if he's not supposed to know how it works he figures it out. "No" is encouragement for him i think sometimes. He can come home and tell me what happened at school or church that day but his stories are limited to who, what and where, but why is above his comprehension right now. Like... why are you in time out? And why did you hit your brother and kick the dog?
My purpose for this blog is to let you know that this diagnoses is not a death sentence, it's not easy either - but that's just parenting. I wouldn't choose for Luke to struggle but he has been a testimony to me and countless others. He reminds me that God is so faithful, that you can't place limits on how God can move in your life or the miracles that are possible when you trust Him.
Luke is like every child - a gift. We are so blessed that God entrusted him to our family!
2 comments:
I just came across your blog and was so encouraged. I have a 4 1/2 month old who has been diagnosed with Dandy Walker variant, has hearing loss, and motor delays but is the sweetest thing I have ever seen. Thank you for being so honest about your journey. It has been a huge encouragement to me! Thanks again.
I totally agree...we are so excited to read how well your little man is doing. Our sweet boy is 5 weeks old and shortly after birth, we found out he has Dandy Walker variant as well as a deletion of 14 genes at chromosome 17p13.2 so multiple congenital anomalies and another one of those "we've never seen this before ever" situations...your blog is a wonderful encouragement to us as well and a reminder that no diagnosis (or lack thereof) sets in stone any particular outcome...God is good, and thanks for your blog! :D - you can read about baby Mason's story here - http://www.masonjosias.blogspot.com
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